Comments on: The management and prevention of complications http://www.portal-hypertension.com A resource guide for those diagnosed with portal hypertension or portal vein thrombosis (PVT) by Clint Steenson Tue, 07 Feb 2012 21:41:16 +0000 http://wordpress.org/?v=2.9.1 hourly 1 By: Clint http://www.portal-hypertension.com/the-management-and-prevention-of-portal-hypertension/comment-page-1/#comment-1510 Clint Tue, 08 Nov 2011 06:31:56 +0000 http://www.portal-hypertension.com/the-management-and-prevention-of-complications/#comment-1510 Andrew. Thank you for sharing your daughter's journey on this blog. It's always heartbreaking to hear of kid's having to go through something as disconcerting as portal hypertension and it's dreaded side effects. You have provided much information and given a whole new perspective for other's to consider, and I am grateful for that. There is so much more to learn and you have provided many new terms and possible techniques for people to consider. There definitely is credibility to using herbs and much I know there is much more history and usage in other parts of the world where practicioners are more willing to prescribe them. You said that doctors said your daughter was not a suitable candidate for surgery, and I am wondering if they or you are aware of a procedure called the Rex Shunt? A specialist in Chicago, plus a few other doctor's around the world have successfully performed this operation and the doctor in Chicago (Riccardo Superina) has performed over 125 to date that have worked well. The procedure works best on kids under the age of 5 as atrophy on the arteries is a concern. I have been in touch with several parent's whose kids have had this procedure and they are very happy with the results. If you have not already done so, you may want to consider calling Children's Memorial Hospital in Chicago and seeing if you can send your daughter's imaging - for at least a second opinion. There is a mom there right now from the Ukraine with her daughter and she herself is a emergency physician, however she came to the US for this operation in order to save her daughter's life. You can read Sonya's journey on my blog if you are interested in background information. I would also be willing to put you in touch with several parent's who would be glad to speak with you about this operation and what they and their children experienced. Your questions or comments are always welcome. Hoping the very best for your little girl! Andrew.

Thank you for sharing your daughter’s journey on this blog. It’s always heartbreaking to hear of kid’s having to go through something as disconcerting as portal hypertension and it’s dreaded side effects. You have provided much information and given a whole new perspective for other’s to consider, and I am grateful for that. There is so much more to learn and you have provided many new terms and possible techniques for people to consider. There definitely is credibility to using herbs and much I know there is much more history and usage in other parts of the world where practicioners are more willing to prescribe them.

You said that doctors said your daughter was not a suitable candidate for surgery, and I am wondering if they or you are aware of a procedure called the Rex Shunt? A specialist in Chicago, plus a few other doctor’s around the world have successfully performed this operation and the doctor in Chicago (Riccardo Superina) has performed over 125 to date that have worked well. The procedure works best on kids under the age of 5 as atrophy on the arteries is a concern. I have been in touch with several parent’s whose kids have had this procedure and they are very happy with the results. If you have not already done so, you may want to consider calling Children’s Memorial Hospital in Chicago and seeing if you can send your daughter’s imaging – for at least a second opinion. There is a mom there right now from the Ukraine with her daughter and she herself is a emergency physician, however she came to the US for this operation in order to save her daughter’s life. You can read Sonya’s journey on my blog if you are interested in background information. I would also be willing to put you in touch with several parent’s who would be glad to speak with you about this operation and what they and their children experienced.

Your questions or comments are always welcome. Hoping the very best for your little girl!

]]> By: Andrew Humphreys http://www.portal-hypertension.com/the-management-and-prevention-of-portal-hypertension/comment-page-1/#comment-1497 Andrew Humphreys Sun, 06 Nov 2011 14:13:25 +0000 http://www.portal-hypertension.com/the-management-and-prevention-of-complications/#comment-1497 My Dauhter is four years old, and it has taken the last four years to diagnose her condition, despite visiting over thirty doctors, paediatricians and other specialists.She has a chronic PVT and she has had a couple of pretty catastrophic bleeds. I postulate: The doctors took 4 years to find this problem, and now they try to convince us that they are god when it comes to treating, but at the same time concede that there is no treatment due to her unsuitability for surgery. This is crap. For the year priorto her haematemesis our herbalist did a wonderful job of abating her plethora of symptoms, when the doctors all laughed at us and tried to convince us she had cytomegalovirus. We knew better. We knew that it was something big and we knew her liver wasnt processing nutrition properly because of all the excess fat in her blood - a test from the herbalist which the doctors refused to look a, and her heavy metal accumulation because she couldn't detoxify - another they refused to look at. They laughed at the herbalist who kept her so well for so long, even though he was in the dark as to what the real issue was. An irridologist told us she had liver issues, a reiki therapist told us she had a blockage to her liver - when I asked paediatricians about the posibility of slow moving blood due to a blocked vein or thick blood they would role their eyes and chuckle - not possible, now four years later they are looking at thick blood causing her blocked vein. hmmmmm. For many of our appointments, we would turn up with our three kids, and at the end of the appointment I'd say - hey, by the way, do you know which child is paige - they would treat the peice of paper in front of them and it never even occured to them to look at the patient. In contrast - the herbalist will look at her and note that she has some clubbing, a white tongue, cloudy corneas, is a little stout for her age, hairdoesn't grow very fast, has distended abdominal veins, note the butterfly rash on her nose, spot the petechiae on her chest,notice that her belly button looks a little unusual etc etc etc, all the things that if the doctors had of noticed she would have been treated within a sensible time frame. The doctors even did several cat scans and ultrasounds, all of which showed the problem but they never noticed it - they were too busy ordering tests for Kala azar, malaria and a host of other diseases which don't even exist in this country. Paige is so much better now that we know what we are treating and have returned to the herbalist, after her emergency management (banding) She is still on the meds given by the docs but that doesn't exclude us from other help.. The interesting part is that she only threw up blood after we skipped the herbalists appointment due to lack of money and she went without her good herbs for a few days. I challenge people to look out of the square, and look to the countries where this is most common such as africa and india. They leave these western doctors in the dark, even when it comes to medical options. Don't beleive them when you go in for your 15 minute appointment and get fed toe shuffling rubbish. try looking up some of these things. Ultrasonographic microbubble thrombolysis Ekkos corp. Washington ultrasonic catheter thrombolysis local thrombolytic administration Jalodar rasayana shochu Mihara rubellus lumbrokinase Tensio 4 beta blockers in combination with isosorbide mononitrates Nattokinase soybean cheese serrapeptase and the list goes on and on with a snotload of things the doctors wont tell you about because they are so blinkered by their "evidence based medicine and peer reviewed journals" and payments from drug company reps. Don't forget that MOST OF the medicines they use have plant based origins - why if these things are so good for you when you are well can they be no good when you are sick. It is rubbish obviously some of these things will be contraindicated with hypersplenism and associated hemmorage risk, or other things specific to your condition, but it depends on your circumstances and state of health. Yes, some of these natural therapies may be scams or may not live up to their expectations but how do you think doctors make their money? by you being sick. Some of these medications that they say are safe are - with short term use, and insidious with long term use - which is what you are going to need if you have a chronic PVT. If you sit back and wait for the sollution to come to you, you are ultimately relying on a doctors motivation to lose a patient. hmmmm. If you are scared of getting laughed at by not pushing the difficult questions you will never get an answer. My daughters doctors dont like me but I'll tell you they don't know half as much as they think they know. Ive lost count of how many times one "specialist" will completely contradict another and it is frustrating, dangerous, unnecessary, ridiculous and utterly counterproductive. At the moment I have one specialist telling me that serrapeptase doesn't work, another telling me that it works so well it will cause internal bleeding, one telling me she has a "fibrotic cord with no collateral devellopment"another telling me she has partial recanalisation with a small amount of flow, one telling me to use vit. K, another telling me it will make no difference (but it does), a gastroenterologist telling me that diet akes NO difference toher condition (hmmm), another telling me that diet is exceptionally important (but sugar intake is inconsequential), and yet another telling me that glucose in portal hypertension patients causes a massive increase in flow in the left gasteic vein leading to an increase in rupture potential for varices - we know the last one to be correct from experience. We have one telling us that you cannot measure the degee of portal hypertension by looking at the degree of caput medusae, and another saying that it is the most reliable indicator - which e know to be correct. DO YOUR HOMEWORK and live a healthy life. Mydaughter would have been dead or gone into multiple organ failure a long time ago if we listened to everything we were told. And yes, the herbalist has made a mistake or two, but he has been more help to us than dozens of doctors, (surgeons aside), expensive help but worth every cent. My Dauhter is four years old, and it has taken the last four years to diagnose her condition, despite visiting over thirty doctors, paediatricians and other specialists.She has a chronic PVT and she has had a couple of pretty catastrophic bleeds. I postulate: The doctors took 4 years to find this problem, and now they try to convince us that they are god when it comes to treating, but at the same time concede that there is no treatment due to her unsuitability for surgery. This is crap. For the year priorto her haematemesis our herbalist did a wonderful job of abating her plethora of symptoms, when the doctors all laughed at us and tried to convince us she had cytomegalovirus. We knew better. We knew that it was something big and we knew her liver wasnt processing nutrition properly because of all the excess fat in her blood – a test from the herbalist which the doctors refused to look a, and her heavy metal accumulation because she couldn’t detoxify – another they refused to look at. They laughed at the herbalist who kept her so well for so long, even though he was in the dark as to what the real issue was. An irridologist told us she had liver issues, a reiki therapist told us she had a blockage to her liver – when I asked paediatricians about the posibility of slow moving blood due to a blocked vein or thick blood they would role their eyes and chuckle – not possible, now four years later they are looking at thick blood causing her blocked vein. hmmmmm. For many of our appointments, we would turn up with our three kids, and at the end of the appointment I’d say – hey, by the way, do you know which child is paige – they would treat the peice of paper in front of them and it never even occured to them to look at the patient. In contrast – the herbalist will look at her and note that she has some clubbing, a white tongue, cloudy corneas, is a little stout for her age, hairdoesn’t grow very fast, has distended abdominal veins, note the butterfly rash on her nose, spot the petechiae on her chest,notice that her belly button looks a little unusual etc etc etc, all the things that if the doctors had of noticed she would have been treated within a sensible time frame. The doctors even did several cat scans and ultrasounds, all of which showed the problem but they never noticed it – they were too busy ordering tests for Kala azar, malaria and a host of other diseases which don’t even exist in this country. Paige is so much better now that we know what we are treating and have returned to the herbalist, after her emergency management (banding) She is still on the meds given by the docs but that doesn’t exclude us from other help.. The interesting part is that she only threw up blood after we skipped the herbalists appointment due to lack of money and she went without her good herbs for a few days. I challenge people to look out of the square, and look to the countries where this is most common such as africa and india. They leave these western doctors in the dark, even when it comes to medical options. Don’t beleive them when you go in for your 15 minute appointment and get fed toe shuffling rubbish. try looking up some of these things.
Ultrasonographic microbubble thrombolysis
Ekkos corp. Washington ultrasonic catheter thrombolysis
local thrombolytic administration
Jalodar rasayana
shochu
Mihara rubellus lumbrokinase
Tensio 4
beta blockers in combination with isosorbide mononitrates
Nattokinase soybean cheese
serrapeptase
and the list goes on and on with a snotload of things the doctors wont tell you about because they are so blinkered by their “evidence based medicine and peer reviewed journals” and payments from drug company reps. Don’t forget that MOST OF the medicines they use have plant based origins – why if these things are so good for you when you are well can they be no good when you are sick. It is rubbish
obviously some of these things will be contraindicated with hypersplenism and associated hemmorage risk, or other things specific to your condition, but it depends on your circumstances and state of health. Yes, some of these natural therapies may be scams or may not live up to their expectations but how do you think doctors make their money? by you being sick. Some of these medications that they say are safe are – with short term use, and insidious with long term use – which is what you are going to need if you have a chronic PVT. If you sit back and wait for the sollution to come to you, you are ultimately relying on a doctors motivation to lose a patient. hmmmm.
If you are scared of getting laughed at by not pushing the difficult questions you will never get an answer. My daughters doctors dont like me but I’ll tell you they don’t know half as much as they think they know. Ive lost count of how many times one “specialist” will completely contradict another and it is frustrating, dangerous, unnecessary, ridiculous and utterly counterproductive. At the moment I have one specialist telling me that serrapeptase doesn’t work, another telling me that it works so well it will cause internal bleeding, one telling me she has a “fibrotic cord with no collateral devellopment”another telling me she has partial recanalisation with a small amount of flow, one telling me to use vit. K, another telling me it will make no difference (but it does), a gastroenterologist telling me that diet akes NO difference toher condition (hmmm), another telling me that diet is exceptionally important (but sugar intake is inconsequential), and yet another telling me that glucose in portal hypertension patients causes a massive increase in flow in the left gasteic vein leading to an increase in rupture potential for varices – we know the last one to be correct from experience. We have one telling us that you cannot measure the degee of portal hypertension by looking at the degree of caput medusae, and another saying that it is the most reliable indicator – which e know to be correct. DO YOUR HOMEWORK and live a healthy life. Mydaughter would have been dead or gone into multiple organ failure a long time ago if we listened to everything we were told. And yes, the herbalist has made a mistake or two, but he has been more help to us than dozens of doctors, (surgeons aside), expensive help but worth every cent.

]]> By: The Peace that Gets Me Through http://www.portal-hypertension.com/the-management-and-prevention-of-portal-hypertension/comment-page-1/#comment-603 The Peace that Gets Me Through Fri, 15 Apr 2011 16:26:33 +0000 http://www.portal-hypertension.com/the-management-and-prevention-of-complications/#comment-603 [...] Management & Prevention [...] [...] Management & Prevention [...]

]]> By: Clint http://www.portal-hypertension.com/the-management-and-prevention-of-portal-hypertension/comment-page-1/#comment-564 Clint Fri, 08 Apr 2011 14:13:22 +0000 http://www.portal-hypertension.com/the-management-and-prevention-of-complications/#comment-564 Thanks Kathy. It is nice knowing that you too are people of faith ... we need to rely on God for uncertain times in our lives. Thank you for your prayer support most of all ... I too need it day by day. Blessings, Clint Thanks Kathy. It is nice knowing that you too are people of faith … we need to rely on God for uncertain times in our lives. Thank you for your prayer support most of all … I too need it day by day. Blessings, Clint

]]> By: kathy905 http://www.portal-hypertension.com/the-management-and-prevention-of-portal-hypertension/comment-page-1/#comment-562 kathy905 Fri, 08 Apr 2011 11:09:03 +0000 http://www.portal-hypertension.com/the-management-and-prevention-of-complications/#comment-562 Clint, One last post for now. You have been very helpful and your explanations are easy to understand. Thank you. We, too, are people of strong faith. I appreciate and welcome your prayers and will lift you up in prayer as well. Kathy Clint,

One last post for now. You have been very helpful and your explanations are easy to understand. Thank you. We, too, are people of strong faith. I appreciate and welcome your prayers and will lift you up in prayer as well.

Kathy

]]> By: Clint http://www.portal-hypertension.com/the-management-and-prevention-of-portal-hypertension/comment-page-1/#comment-557 Clint Fri, 08 Apr 2011 05:29:05 +0000 http://www.portal-hypertension.com/the-management-and-prevention-of-complications/#comment-557 Hi Kathy, I am truly sorry for Mark's current condition, and I feel for you in this position. Portal Hypertension (aka Portal Vein Thrombosis) is complicated enough without having extra things to deal with. My knowledge of portal hypertension is that this is the overall condition or complications if you will of the initial problem of the portal vein being clotted. In fact I have started to write a post on the distinction of the 2 terms, although they are one in the same. With the portal vein being clotted the blood is re-routed due to the pressure from the clot, therefore causing arteries to protrude into the esophogas, and stomach from the lining of such. When "varices" form in the esophogas as opposed to the stomach, then the danger of a bleed is imminent and the prognosis is dependant on other complications or whether or not the bleeding can be stopped in time and at the same time keeping the airway open. I myself have had a bleed from the varices in my stomach, and although the severity is not exactly the same as from the esophogas, however I came very close to having a transfusion at that time. When you asked about prognosis ... it is hard to answer that because I think it all depends on the individual and what other complications they may have. One thing that can happen and apparently has started to happen to me, is that a person eventually can develop "pulmonary hypertension". Pulmonary hypertension takes place when the heart works harder to keep blood pumped through the lungs. In particular the right side of the heart gets enlarged because after all it is a muscle, and when it works harder it becomes bigger. This is not good as in the long run the heart begins to fail. I hope to post another article on this topic in the future and in my research so far this condition is uncommonly known as "portopulmonary" hypertension. All of this can be a little overwhelming at times, and it is not my intention of scaring anyone, but I believe people need to know the realities of what we are up against. On a more positive note, there are people who subscribe to this blog who like myself have lived for a long time with this condition and seem to be hanging in well. I have lived almost 9 year's now beyond my diagnosis, and I have grade 3 varices - which are the most dangerous. I take a high dosage of Nadolol (beta blocker) 140 mg per day, plus am on a host of other medications including 2 needles per day of Fragmin (anti-coagulant) for the past 5 years. I get diarrhea and severe pain, and it is not fun dealing with, but I carry on as best as possible. I have a strong faith which I know has sustained me, and I just carry on as best as I am able. There are people I know who have had PH for 30+ year's and although they have had worse bleeding episodes they have survived. PH can be traced to people who have cirrhosis of the liver, or may have a form of hepatitis as the cause. In rarer cases, such as mine and some of the folks I have talked too, the cause is genetic. People with this form of PH are referred to as having non-cirrhotic portal hypertension. Has your husband tried Imodium for helping slow down the diarrhea? I was prescribed Codeine for pain, which is only "sort-of" effective as the pain is extremely hard to treat due to it being vascular in nature. I have asked my doctors about pain management, and it seems that there is not much out there to control the pain in this region. I know of one gal who is on Fentenyl patches for pain, and that has not proven to be 100% effective for her, but only takes the edge off. Well ... I hope this helps? Please extend my regards to your husband and tell him to keep up the fight! Your information is beneficial and if you hear of any new breakthroughs please come back to share your story! In the meantime (I hope you don't mind) but I will keep Mark and you in my prayers! Take care, Clint Hi Kathy,

I am truly sorry for Mark’s current condition, and I feel for you in this position. Portal Hypertension (aka Portal Vein Thrombosis) is complicated enough without having extra things to deal with. My knowledge of portal hypertension is that this is the overall condition or complications if you will of the initial problem of the portal vein being clotted. In fact I have started to write a post on the distinction of the 2 terms, although they are one in the same. With the portal vein being clotted the blood is re-routed due to the pressure from the clot, therefore causing arteries to protrude into the esophogas, and stomach from the lining of such. When “varices” form in the esophogas as opposed to the stomach, then the danger of a bleed is imminent and the prognosis is dependant on other complications or whether or not the bleeding can be stopped in time and at the same time keeping the airway open. I myself have had a bleed from the varices in my stomach, and although the severity is not exactly the same as from the esophogas, however I came very close to having a transfusion at that time.

When you asked about prognosis … it is hard to answer that because I think it all depends on the individual and what other complications they may have. One thing that can happen and apparently has started to happen to me, is that a person eventually can develop “pulmonary hypertension”. Pulmonary hypertension takes place when the heart works harder to keep blood pumped through the lungs. In particular the right side of the heart gets enlarged because after all it is a muscle, and when it works harder it becomes bigger. This is not good as in the long run the heart begins to fail. I hope to post another article on this topic in the future and in my research so far this condition is uncommonly known as “portopulmonary” hypertension.

All of this can be a little overwhelming at times, and it is not my intention of scaring anyone, but I believe people need to know the realities of what we are up against. On a more positive note, there are people who subscribe to this blog who like myself have lived for a long time with this condition and seem to be hanging in well. I have lived almost 9 year’s now beyond my diagnosis, and I have grade 3 varices – which are the most dangerous. I take a high dosage of Nadolol (beta blocker) 140 mg per day, plus am on a host of other medications including 2 needles per day of Fragmin (anti-coagulant) for the past 5 years. I get diarrhea and severe pain, and it is not fun dealing with, but I carry on as best as possible. I have a strong faith which I know has sustained me, and I just carry on as best as I am able. There are people I know who have had PH for 30+ year’s and although they have had worse bleeding episodes they have survived. PH can be traced to people who have cirrhosis of the liver, or may have a form of hepatitis as the cause. In rarer cases, such as mine and some of the folks I have talked too, the cause is genetic. People with this form of PH are referred to as having non-cirrhotic portal hypertension.

Has your husband tried Imodium for helping slow down the diarrhea? I was prescribed Codeine for pain, which is only “sort-of” effective as the pain is extremely hard to treat due to it being vascular in nature. I have asked my doctors about pain management, and it seems that there is not much out there to control the pain in this region. I know of one gal who is on Fentenyl patches for pain, and that has not proven to be 100% effective for her, but only takes the edge off.

Well … I hope this helps? Please extend my regards to your husband and tell him to keep up the fight! Your information is beneficial and if you hear of any new breakthroughs please come back to share your story! In the meantime (I hope you don’t mind) but I will keep Mark and you in my prayers!
Take care, Clint

]]> By: kathy905 http://www.portal-hypertension.com/the-management-and-prevention-of-portal-hypertension/comment-page-1/#comment-554 kathy905 Thu, 07 Apr 2011 13:15:25 +0000 http://www.portal-hypertension.com/the-management-and-prevention-of-complications/#comment-554 Clint, Thank you for your reply. Yes, Mark was put on 80 mg Nadolol in Nov. He does not have a 'clot' but they think the nodular disease caused the portal hypertension. We are presently working with a liver specialist out of Chicago. To complicate matters, he is on hemodialysis and is not a candidate for another transplant due to CMV infections and DSA and ascites. He is not very tolerant of pain and found lomotil to help with the intestinal cramping, but it does not work so well in stopping the diarrhea. I was wondering (and have not asked anyone) what the prognosis is for this PH disease. Kathy Clint, Thank you for your reply. Yes, Mark was put on 80 mg Nadolol in Nov. He does not have a ‘clot’ but they think the nodular disease caused the portal hypertension. We are presently working with a liver specialist out of Chicago. To complicate matters, he is on hemodialysis and is not a candidate for another transplant due to CMV infections and DSA and ascites. He is not very tolerant of pain and found lomotil to help with the intestinal cramping, but it does not work so well in stopping the diarrhea. I was wondering (and have not asked anyone) what the prognosis is for this PH disease.

Kathy

]]> By: Clint http://www.portal-hypertension.com/the-management-and-prevention-of-portal-hypertension/comment-page-1/#comment-551 Clint Thu, 07 Apr 2011 06:13:16 +0000 http://www.portal-hypertension.com/the-management-and-prevention-of-complications/#comment-551 Hi Kathy, Thanks for your comments and question. Imodium is prescribed for Portal Hypertension (PH) patients because the arteries of the wall of the intestines are engorged with blood due the the clot to the liver. Imodium is used to slow down the frequency of bowel movements in order to keep the associated pain at bay. I also take the same amount as your husband, but have increased that dosage on an as need basis depending on how much discomfort I have in the day. I was also prescribed psyllium fiber to help congeal the matter and slow down the frequency of bathroom visits. There is much pain associated with this side effect of PH, and it is harder to treat because it is vascular in nature. Does your husband deal with this type of pain? Also ... is he on any kind of beta blocker to slow down his heart rate? Nadolol (brand name Corguard) is the one I am on and I take 140mg per day. Hope this helps? Let me know if there is anything else I can do? Kindest regards, Clint Hi Kathy,

Thanks for your comments and question. Imodium is prescribed for Portal Hypertension (PH) patients because the arteries of the wall of the intestines are engorged with blood due the the clot to the liver. Imodium is used to slow down the frequency of bowel movements in order to keep the associated pain at bay. I also take the same amount as your husband, but have increased that dosage on an as need basis depending on how much discomfort I have in the day. I was also prescribed psyllium fiber to help congeal the matter and slow down the frequency of bathroom visits. There is much pain associated with this side effect of PH, and it is harder to treat because it is vascular in nature.
Does your husband deal with this type of pain? Also … is he on any kind of beta blocker to slow down his heart rate? Nadolol (brand name Corguard) is the one I am on and I take 140mg per day.

Hope this helps? Let me know if there is anything else I can do?

Kindest regards, Clint

]]> By: kathy905 http://www.portal-hypertension.com/the-management-and-prevention-of-portal-hypertension/comment-page-1/#comment-545 kathy905 Wed, 06 Apr 2011 18:57:29 +0000 http://www.portal-hypertension.com/the-management-and-prevention-of-complications/#comment-545 Clint, My husband was recently diagnosed with portal hypertension caused by NRHL (nodular regenerative hyperplasia of the liver) following a kidney transplant in 2007, rejection of the kidney in 2010 and nephrectomy of the transplanted kidney in late 2010. He also takes 4-6 Imodium a day and no one can tell us WHY he has this GI upset. I am assuming the portal hypertension is the cause. Can you explain it to me? (I also realize that there may be other factors involved but we are not aware of them.) By the way he also has a protein C deficiency and an abnormality of Factor 5. Thanks , Kathy Clint,
My husband was recently diagnosed with portal hypertension caused by NRHL (nodular regenerative hyperplasia of the liver) following a kidney transplant in 2007, rejection of the kidney in 2010 and nephrectomy of the transplanted kidney in late 2010. He also takes 4-6 Imodium a day and no one can tell us WHY he has this GI upset. I am assuming the portal hypertension is the cause. Can you explain it to me? (I also realize that there may be other factors involved but we are not aware of them.) By the way he also has a protein C deficiency and an abnormality of Factor 5.
Thanks , Kathy

]]> By: judith sheldon http://www.portal-hypertension.com/the-management-and-prevention-of-portal-hypertension/comment-page-1/#comment-2 judith sheldon Fri, 12 Feb 2010 07:05:51 +0000 http://www.portal-hypertension.com/the-management-and-prevention-of-complications/#comment-2 Thanks so much. Thanks so much.

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