Protal Hypertension Resource!

An actual case report regarding the Rex Shunt Procedure (adults)

In the last decade, the Rex Shunt procedure has been successfully performed on children with portal vein thrombosis, however to the best of my knowledge has not been performed on adults with the exception of one person which I found had the operation in Niigata, Japan. The following article (click link below) was posted by a group of Japanese doctor’s who had successfully performed the Rex Shunt Procedure on an adult male a few year’s ago. Although the article is technical in nature, nonetheless I hope you are able to glean some good information from it?

It is interesting to note that this group of Japanese doctor’s are recommending the Rex shunt procedure be performed on a larger scale for adults with portal vein thrombosis.

http://www.springerlink.com/content/e53875128l97v008/fulltext.html

This article begs the question of whether or not there is general consensus amongst gastroentrologists and other specialists that this procedure is even a viable option for patients with PVT. Cost factor’s and risks versus gains would likely weigh into the equation also? This being said I would really appreciate input from anyone, especially doctor’s as the report above and a recent statement (see below) from Dr. Riccardo Superina (Children’s Memorial Hospital Chicago, IL) support the procedure be performed on adults.

“There is no reason that it cannot be applied to adults, and we would be happy …to hear their cases if they wished to send case summaries along and recommend further investigation or action.”

{ 4 comments… read them below or add one }

Claire June 16, 2010 at 8:33 am

This is great news! So, I think I might make a few enquiries with Dr Superina and find out if he would be willing to operate on me!

Clint June 16, 2010 at 1:48 pm

It may be worth a try to contact Dr. Superina as you have youth on your side? Don’t know what funding is available for you but you may want to investigate that also. Wouldn’t be great if this was to be?

Claire July 9, 2010 at 8:46 pm

Hey Clint,
E-mailed doc and hospital the other day offering to be an adult ginea pig for the adult option of rex shunt proceedure! Fingers crossed, will figure out the funds later if they say yes but regardless of the funds, anything they can suggest I would LOVE to have considered! Lots of prayers that they will say “yes”, and “come on over!” :)

Clint July 12, 2010 at 4:02 am

Claire,

Wow Claire you are one brave girl! You have endured much in your life, and I think if I was in your position I believe I would be doing the same thing!

Please keep me in the loop as soon as you hear of anything? Praying for sure!

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