Some of you may or may not know that I had been admitted to the University Hospital early Sunday morning with a new clot. As you know any clot can be dangerous, but this new one is located below an existing clot in my superior mesenteric Vein is most troublesome. This clot has restricted blood flow to the bowel region, causing it to enlarge and of course pain comes with that. If collateral arteries do not begin to feed this area of the bowel, it would die and they would have no option but remove this section – and that would be dangerous for me also. They have me on morphine and they are giving me antibiotics intravenously to stave off any potential infection. The actual terminology of this particular condition is referred to as mesenteric venous thrombosis. To be more precise the severe pain I was having is caused by swelling and distention of the bowels.
I was informed last night by my hematologist that he was going to speak with a team about a procedure commonly used for stroke patients in the early stages. The procedure is called TPA and is performed in the early stages (usually 1 hour) to break down clots in the brain and also the heart. For TPA to be used in my case, it is almost unheard of, but the alternatives for me not to go ahead do not look good at all.
The danger for me to have this procedure done, is that I could bleed from the varices in my esophagus or I could potentially bleed in my brain. See link for details: www.portal-hypertension.com/esophageal-varices/
The other downside is, even if it works, is that the clot could reappear and I would have to be reassessed for eligibility. The doctor said I have age on my side (I liked hearing this) and I am relatively doing okay with my current treatment protocol so he feels confident this will work.
Earlier today I really struggled with all of this as I haven’t had much time to digest it all. Right now I feel much more at peace because of prayers lifted on my behalf. As I face this procedure sometime today, I am asking you for your prayer support as I believe the more people praying, the better the outcome in the end.
Thank you for your support!
(Note: After composing this message, 3 pastors from our church came and prayed with me. I have a tremendous sense of God’s peace over me now and my very life is in His hands – as it always has been for many years now)
UPDATE: The TPA was postponed by the ICU doctor until 8 am this morning. Apparently he wanted easier access to GI doctors in the event of a bleeding issue, and more of those specialists are available during the day. I was prepped early last evening here in ICU and I am spending the night here.
Post TPA Update: IV is out but I still can’t move around for awhile yet. The pain I have still is milder in the abdomen, and the injection site but they still are giving me morphine to handle it. Dr Ritchie came in an hour ago and said that the clot may or may not still be there as it may have been there too long? The GI was also here earlier and said the truth won’t really be revealed until they take a scan – maybe tomorrow or Saturday. They will monitor me for at least a few more days. Thanks for your prayers!
UPDATE: Released from hospital late Friday August 31, 2012. TPA went well and there is some residual pain. Click Here for the Latest Status…
Wow, thanks. Don’t even know you but love your positive attitude. I too have PH, am young-ish, and from cirrhosis from an autoimmune disease. I was/am scared but seeing/hearing about others makes me feel less nervous. Keep the faith and positive attitude.
Thanks Janet, I am glad you found my blog also. Wishing all
the best in your health and this for many good years
Lets everything be successful.
I am praying for you Clint.
Thank you Rayna for positive comments and most of all your prayers.
Clint, I haven’t posted for a while but always keep an eye on your site and today I come across your latest posting, I wanted to wish you all the very best of luck with your procedure today. It’s all sounds pretty frightening and I can certainly relate to the fact that even a relatively routine procedure can be significantly complicated when you have PVT.
Whilst I do not have a faith myself I know yours brings you tremendous comfort which Im sure is carrying you through all this.
I hope to read about your swift recovery very soon.
Thanks Nicki for your kind words! Yes my faith has really been strong – that and the combination of thoughtful comments from others have been very helpful as I struggled through these last few weeks. I hope to update my blog soon so will try to get that accomplished as soon as I am able.
Clint, I am praying for you! May Gods peace continue to be with you, & His Healing Hand Be Upon You.
Thanks Yvonne – bless you for your faithfulness! I hope to update my blog with the latest information as soon I feel up to it – which could be a day or two at this point.
I just came across your latest post. I had a bowel re-section in October of 2009 more than a year after my PVT was diagnosed. I sympathize with your pain as I experienced excruciating pain for over a year. A meter of dead and damaged bowel was removed in a very risky operation. I hope the procedure you are undergoing is successful. Prayer, family and perseverance helped me through this difficult time. Thank you for this website. It has been a god send for me. It answered many of my questions and gave me comfort knowing I was not alone. I will be thinking positive thoughts.
All the best.
Yes you also have been through a lot of pain associated with the condition so you do really understand. I pray you are doing well these days? I hope to update my blog later today with the latest news of my ordeal. I am at home now and trying hard to get some needed rest.
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Praying for you!