Clot Connect … Blood Clot Resource par excellence!

by Clint on July 23, 2013

clot connectDid you know?

One person is diagnosed with a blood clot every minute.  One person dies from a blood clot every six minutes. (Clot Connect).

If you haven’t yet heard of Clot Connect an online resource for the general condition of clotting, I am pleased to introduce this to you.   Clot Connect is a resource for both patients and healthcare professionals offering up to date information on clotting and support to those suffering with the condition.

I am grateful for permission granted to me to refer to their site, and in turn for them to point back at mine for specific information on portal vein thrombosis and the ongoing condition of portal hypertension.

Clot Connect further defined (as per Clot Connect background)

Clot Connect®(clotconnect.org) is an information and outreach project of the University of North Carolina at Chapel Hill in the Hemophilia and Thrombosis Center.  Clot Connect’s mission is to increase knowledge of blood clots, clotting disorders and anticoagulation by providing education and support resources for patients and health care professionals.

Clot Connect emerged in September 2010 from the observation that blood clot survivors face many unique challenges including risks associated with anticoagulant use (blood thinners), the development of post-thrombotic disorders and increased risks for future clots. Blood clot survivors and their families need information and support to manage the effects of a blood clot and to prevent future clots. It was also recognized that health care professionals need easier access to the latest treatment options and scientific research related to the diagnosis, care and management of patients with blood clots and clotting disorders. Additionally, it was known that although blood clots area a common health condition, there exists low public awareness.

 Clot Connect initiatives are targeted at:

  • Persons who have experienced a blood clot
  • Persons at high risk for developing a blood clot
  • Healthcare professionals who treat patient with or at risk for blood clots

To access Clot Connect click here:  http://www.clotconnect.org/

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{ 4 comments… read them below or add one }

Pam Moser July 23, 2013 at 1:08 pm

Thanks Clint for directing me to this site. As a person who has had a portal vein thrombosis. I had a wonderful hematologist 2 years after the clot who diagnosed me with antiphospolipid lupus antibody. I had him for several years until he’s moved to Florida since then I have had a hematologist who doesn’t know a lot about my disease has not been a lot of help sort of been in the dark didn’t even have an idea about portal vein hypertension I have now got another appointment with another hematologist in hopes that they can lead me in the right direction. it has been an uphill battle for me being from a small town and no one knows about the disease not even my doctor can help me I even had to make suggestions to him just hope and pray this new hematologist is the answer to my prayers unless anybody has any other suggestions I live in the state of Virginia right on the Virginia Tennessee line.

Reply

Clint July 24, 2013 at 12:52 am

Thanks Pam, It has been good getting to know you via this blog and Facebook. I hope and pray the new hematologist is the answer to your prayers and that you continue to thrive in everyway. Just on a side note … I was in your part of the world back in the early 80’s with a friend of mine, and at that time I remember being on the Tennessee Virginia line … I think that is close to the Cumberland Gap if I am correct? Beautiful part of the US from what I remember.

Blessings!

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Sai Krishna July 26, 2013 at 6:42 pm

Hey amigo does portal hypertension causes blood vomitings? I want to know it quick. As quick as possible

Reply

Clint July 26, 2013 at 7:55 pm

Yes, it can cause vomiting, and this is usually from the varices that form in the esophagus from the pressure build-up on the lining of that area from the clot to the portal vein. Hope this helps?

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