As you know after over 11 hours of surgery with Dr. Superina at Children’s Memorial he was only able to do a Mesocaval Shunt instead of the Rex Shunt as many attempts to do that were met with clots which disallowed it from working. Now the problem is whether or not the Mesocavel Shunt is actually working and they will not know anything for a day or tw0. Sonya’s INR blood is fluctuating too much so they are trying to understand this more. Dr.Superina has ordered an ultrasound to see if they can figure out what exactly is going on with her system. They are concerned with her levels because she is still bleeding from her incision, and she has also been bruising. Another grave concern is the fact that she still has gastric varices and she could also be at risk for bleeding again.
Sonya also continues to have digestion and reflux problems. She could not eat the regular formula or baby foods, and had trouble keeping anything down. The nutritionist in the hospital gave her a special formula called EleCare formula and it seems like Sonya is able to digest that. They provided Tatyana with 6 cans supply of this formula, which was covered from an emergency fund from the hospital. They also gave here a Warfarin supply for 2 months, which was covered from the same fund. Tatyana will still have to buy liquid Omeprasol for her, and it is expensive at 184$ for 300 ml which is her monthly amount. She still needs to buy formula and Coumadin plus other medications to take home for 2 months after when she leaves and she does not know how she is going to pay for it at this point. They are going to stay in Chicago one-month post-op for follow-up, so they will need funds for food. She also mentioned that they would need to purchase warmer clothing; however Shelly has rallied some people from her Facebook who will provide in that regard. Shelly also will be donating her profits from the sale of an on line women’s speciality store and here is the address for that: http://www.mythirtyone.com/shellyhart/ all orders in the US will be shipped directly however orders to Canada will have to be shipped by Shelly herself.
Also a big thanks to Shelly for setting up another important site just today for donations to families of children with PVT/Rex Shunts – check this out: http://www.everribbon.com/ribbon/view/1399 (I can see this directly helping not only Sonya’s family but many others in the days/years to come).
Please continue pray for Sonya’s needs – first of all for her health problems and secondly for financial issues that have arisen from her recent discharge.