Tonight I want to share a good news story from a comment posted on my blog earlier this evening. The story comes from Janet who suffered from portal hypertension for many years. Here is her story …
“Just found this site today and had been posting on DVT forum previously. Have had PVT for 9 years making it a chronic condition and also had one episode of bleeding esophageal varices 3 years ago. I have had numerous endoscopies with 5 sessions of banding and at last scope had Grade II varices. I have been on nadolol to keep the pressure down and was restarted on coumadin a year ago to help with the liver pain associated with this condition. The feeling was that thinner blood would flow more easily through the collateral veins that had developed and it did help with the discomfort. Of course it was pretty unnerving to know I had very thin blood with a history of bleeding varices but I was willing to try anything to try and get a normal life back. It was also found that my mesenteric and splenic vein had thrombosed but fortunately, my intestines never became ischemic. Today I went to my specialist for my annual checkup and Doppler Ultrasound showed normal flow through the portal vein – main, right and left! Had no idea after all these years that this condition would reverse itself but can only thank God and my doctor that it did. I can stop the coumadin and the nadolol and hopefully get the stamina back to start exercising again and, along with good nutrition, back to my old self. I tell this story to let you all know that it can happen, and not only in the acute stages. The clot was attributed to 9 months of hormone replacement therapy so my liver was healthy to start and luckily remained healthy throughout this whole process which I’m sure helped in the overall picture. My heart is with all of you, I know what you’re going through and hope and pray that my story becomes your story. Godspeed”.
So there you have it. Up until about a month ago I had not heard of anyone with portal hypertension (PH) being completely healed of the clots and its accompanying symptoms except for another gal whose condition I recently learned had cleared up, albeit in the supposed “acute” stage of portal hypertension. When I asked my specialist about this recently she confirmed that PH can in rare cases can clear up so the possibility is there, and beyond that my understanding was it was very unlikely. With a fantastic outcome such as Janet’s I can only hope and pray that this would eventually be the case for many of you, your loved one, or possibly for myself. Recent imaging I had done showed extensive congestion of arteries due to the clotting, and with that I have bowel ischemia so I don’t feel too hopeful sometimes, but anything is possible I guess so I’ll just keep praying and trusting.
Keep the stories coming!