Tag Archives: onset pain

Portal Hypertension … A Few More Answers

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The  much anticipated appointment with my Gastroenterologist has come and gone (over 2 weeks past).  In a prior post I mentioned that  my  doctor had been away for a year on a study leave specifically regarding Portal Hypertension.   She studied at both The University of Barcelona (Spain), and also at the Yale School of Medicine in New Haven, Connecticut.  For myself personally I had hoped to at least learn of any new developments on the Portal Hypertension front, but unfortunately in my case, that was not to be.  All being said, I have decided to hold off on posting my personal thoughts until my next post as I would like to dedicate a few more lines on the subject than what I rightfully should do here.   So as promised I will address some of the specific questions a few of my bloggers had for my Gastroenterologist in which I was able to ask her on my last appointment.

Audra wanted to know what my doctor had to say about heart rate during exercise for patients with Portal Vein Thrombosis (PVT) and Esophageal Varices.  She takes Propranolol (10 mg twice per day) to lower blood pressure.  She also takes a diuretic to prevent ascites.  In response to Audra’s questions my doctor said that it is not recommended to engage in exercise that would elevate the  heart rate to dangerous levels  which would counter the role of the Nadolol to lower blood pressure in order  to prevent bleeding from the varices.  She did not say that exercise for PH patients was a bad thing at all, but that it should be moderate in nature.  She suggested walking as a good alternative to an intense cardiovascular workout such as running or aerobics.

Audra also asked will esophageal varices continue to develop after several bandings, or will they eventually be completely eradicated?  Unfortunately the answer to this question is something none of us really want to hear.  Yes varices will develop after banding, and no the varices sometimes will not be completely eradicated!   (These very same questions had crossed by mind and I know many of you also).  In the event that patients (myself included) who are on high dosages of anti-coagulants and evasive measure are taken to band the varices after a bleed, there is the added risk that bleeding would not stop from the site where the varices were removed.  When the varices “slough off” after banding there would remain ulceration and this is where the bleeding would likely continue.

Cheryle sent me an article from The New England Journal of Medicine in turn that her own doctor from the Mayo clinic had originally sent her. The article entitled Mesenteric Venous Thrombosis primarily deals with the subject of “onset pain”, but really does not deal with the condition of “chronic pain” as associated with PVT.  Cheryl wanted to know how doctors are treating patients with chronic pain associated with Portal Vein Thrombosis and it associated side effects.  Well, I am sorry to report that my doctor did not shed much light on this subject, but only stated that this type of pain is extremely challenging to treat because of it being vascular in nature.   I know of more than one person who I have met since I started this blog, who are on Fentanyl patches to combat the pain.  Fentanyl is normally used for breakthrough cancer pain, and it is considered to be one of the highest forms of prescription medication one can take to combat pain.  From personal experience, when I get onset pain my prescribed medication (Codeine) and a few other “natural remedies” help a little to take the edge off.  Codeine is an opiate used for its analgesic, antitussive, and antidiarrheal  properties. In prior posts I have mentioned that soaking in a warm tub, taking a few drops of  Oil of Peppermint along with  honey in a cup of warm water, plus  the pain medication can help soothe  the pain.  When the pain is severe enough though,  nothing can touch it, so unfortunately I usually have to ride it out until it subsides.  I know this is not the case for many of you, and my heart goes out to you … just wish I had more answers?

Cheryl (not the same Cheryle as the above) wondered  how long it would actually take for varices to develop?   Unfortunately my doctor stated that the time frame was short and that varices could develop within weeks.  On a side note, Cheryl has herself been referred by her own doctor to my doctor here at the University of Alberta in Edmonton.   As with many of us Cheryl also has endured much, and in many ways her condition is extenuated by the fact that she also suffers from Lupus. For Cheryl’s sake I sincerely hope she gets more answers concerning her individual health needs and I pray that her condition will continue to improve in all respects!

As I was writing this post, I was reminded again with a sense that this information is not at all positive for many of you.   No one  likes to be the bearer of bad news, but by sharing this information I want to remind you again that you are not alone.   It is very easy to get down about the realities of this illness – I’ve been there!  In my next post I will update you on my prognosis, but at the same time  I also want to share at little more about “the hope that is within me”.  That hope keeps me going despite the hard realities of what can happen when one has a dangerous condition such as portal hypertension.

Until next time,

Clint

Pain … a perpetual reminder

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Well it’s been several week’s now since I first started using Peppermint Oil for pain control. Unfortunately I have nothing conclusive to report regarding the use of this natural means. Vascular pain as discussed in a prior  post is  extremely hard to treat as I have been told and sadly I continue to experience pain on a daily basis.

In attempts to take the edge off the pain,  I still use Codeine, and Tylenol albeit sparingly.  Added to the meds I use heat in the form of a warm bath or hot water bottle, and yes I still use peppermint oil in lukewarm water with a teaspoon of unpasteurized honey.  More recently my doctor has prescribed Toradol, however I  experienced bouts of dizziness with no apparent  pain relief.   To clarify, when I say pain control, even the Codeine or Tylenol will only just take the edge off.  So I just tarry on,  and bear the pain when it comes.  Fortunately that pain usually will subside over time, and the episodes normally  last a few hours or more.  There are days though where my whole day is taken up fighting pain.  Rest, heat,  meds, and yes a warm cup of peppermint tea are the order of the day when pain rears it’s ugly head!

Not really  sure what triggers the pain but am only left with the grim fact that all the arteries within my intestinal tract are engorged with blood due to portal pressure.  There are certain foods I know will irritate my system, and I refrain from eating them.  Can only surmise at this point that the pain may be triggered by stress?

Peppermint Oil … a remedy for bowel pain?

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Recently, I’ve been experimenting with the health benefits of Peppermint Oil for treating Irritable Bowel Syndrome (IBS) and related digestive problems.  Due to almost daily intestinal pain originating from the clots, I thought it would be worth a try to see if I could curtail thedaily pain and discomfort experienced through natural means.

The health benefits of peppermint oil include its ability to not only treat digestive problems, bowel spasms and pain, but is apparently good for  respiratory problems, headache, nausea, and fever.  Peppermint is a cross between spearmint and water mint and is known as one of the oldest medicines in the world.  Most people know about peppermint as a flavoring agent, and it is one of the most palatable oils on the market today.  Peppermint oil contains minerals such as iron, magnesium, calcium, folate, potassium, copper, manganese, and magnesium.  Also contains vitamin A and vitamin C, plus omega-3 fatty acids.

I have only known one other person who takes Oil of Peppermint in capsule form for IBS, and he claims it has improved his quality of life significantly.  Although his cause was not associated with Portal Hypertension, like myself he had onslaughts of irregularity at the most inconvenient times.  After talking with him I had looked into purchasing some Peppermint Oil in capsule form several month’s ago, but due to prior financial commitments which were health related at the time, I forfeited the option as the cost was more than we could bear.

However, a few weeks ago I was at a local farmer’s market in my area, and there was a vendor who was selling all sorts of essential aromatherapy oils used for the treatment of a variety of  ailments, and I became convinced that I needed to investigate the option again.  As it turns out I was able to purchase from this gentleman the actual Oil in it’s most concentrated form for a relatively low cost.

Peppermint oil has a muscle relaxing property which has been found to ease irritable bowel syndrome. Validation for this theory has been completed through scientific research, but the exact mechanism is not known.  Further benefits of peppermint oil are also being studied for its antispasmodic properties.    The presence of calcium antagonism in peppermint oil is believed to be the ingredient within that helps to relieve pain.   Because peppermint oil is cooling in nature it can help to reduce fever.  The list of benefits is large, but for the specifics of portal hypertension and it’s related side effects I have only mentioned what is pertinent to the condition.

On a daily basis I add 1 drop of peppermint oil and 1 teaspoon of unpasteurized honey to a lukewarm glass of water.  I have been doing this for a little over a week now, and the pain seems to have lessened to some degree.  The verdict is still 0ut though as to how long this will help me because of the root cause of my issues?  If you have experienced success with Peppermint Oil or any other herbal or natural remedy, I would love to hear about it.

Until next time …